National Cancer Dataset
National Cancer Data Set Overview Text

Site Specific Cancers

Breast Cancer
Colorectal Cancer
Lung Cancer
Head and Neck Cancer
Sarcoma and Skin Cancer
Urological Cancer
Upper GI Cancer
Gynaecological Cancer
Dataset data element
Demographics
NHS NUMBER
LOCAL PATIENT IDENTIFIER
ORGANISATION CODE (CODE OF PROVIDER)
CARE SPELL IDENTIFIER
PERSON FAMILY NAME
PERSON GIVEN NAME
PATIENT USUAL ADDRESS (AT DIAGNOSIS)
POSTCODE OF USUAL ADDRESS (AT DIAGNOSIS)
SEX
BIRTH DATE
GMP (CODE OF REGISTERED OR REFERRING GMP)
CODE OF GP PRACTICE (REGISTERED GMP)
ORGANISATION CODE (RESPONSIBLE PCT)
ETHNIC CATEGORY
Referrals
SOURCE OF REFERRAL FOR CANCER
REFERRING ORGANISATION CODE
REFERRER CODE
CANCER REFERRAL PRIORITY TYPE
CANCER REFERRAL DECISION DATE
REFERRAL REQUEST RECEIVED DATE
CONSULTANT CODE
MAIN SPECIALTY CODE
DATE FIRST SEEN
DELAY REASON REFERRAL TO FIRST SEEN (CANCER)
DELAY REASON COMMENT (FIRST SEEN)
URGENT CANCER REFERRAL TYPE
CANCER STATUS
WAITING TIME ADJUSTMENT (FIRST SEEN)
WAITING TIME ADJUSTMENT REASON (FIRST SEEN)
SOURCE OF REFERRAL FOR OUT-PATIENTS
Imaging
SITE CODE (OF IMAGING)
CLINICAL INTERVENTION DATE (CANCER IMAGING)
CANCER IMAGING MODALITY
ANATOMICAL EXAMINATION SITE
INVASIVE LESION SIZE (RADIOLOGICAL DETERMINATION)
Diagnosis
DIAGNOSIS DATE (CANCER)
PRIMARY DIAGNOSIS (ICD)
TUMOUR LATERALITY
BASIS OF DIAGNOSIS (CANCER)
HISTOLOGY (SNOMED)
GRADE OF DIFFERENTIATION (AT DIAGNOSIS)
Cancer Care Plan
MDT DISCUSSION INDICATOR
MULTIDISCIPLINARY TEAM DISCUSSION DATE
CARE PLAN AGREED DATE
RECURRENCE INDICATOR
CANCER CARE PLAN INTENT
PLANNED CANCER TREATMENT TYPE
TREATMENT TYPE SEQUENCE
NO CANCER TREATMENT REASON
PERFORMANCE STATUS (ADULT)
Staging
T CATEGORY (FINAL PRETREATMENT)
STAGING CERTAINTY FACTOR (T CATEGORY)
N CATEGORY (FINAL PRETREATMENT)
STAGING CERTAINTY FACTOR (N CATEGORY)
M CATEGORY (FINAL PRETREATMENT)
STAGING CERTAINTY FACTOR (M CATEGORY)
TNM CATEGORY (FINAL PRETREATMENT)
STAGING CERTAINTY FACTOR (TNM CATEGORY)
SITE SPECIFIC STAGING CLASSIFICATION
TNM CATEGORY (INTEGRATED)
T CATEGORY (INTEGRATED STAGE)
N CATEGORY (INTEGRATED STAGE)
M CATEGORY (INTEGRATED STAGE)
Surgery and Other Procedures
SITE CODE (OF SURGERY)
CONSULTANT CODE
MAIN SPECIALTY CODE
CANCER TREATMENT INTENT
DECISION TO TREAT DATE (SURGERY)
START DATE (SURGERY HOSPITAL PROVIDER SPELL)
PROCEDURE DATE
PRIMARY PROCEDURE (OPCS)
PROCEDURE (OPCS)
DISCHARGE DATE (HOSPITAL PROVIDER SPELL)
DISCHARGE DESTINATION (HOSPITAL PROVIDER SPELL)
Pathology Details
PATHOLOGY INVESTIGATION TYPE
SAMPLE RECEIPT DATE
INVESTIGATION RESULT DATE
CONSULTANT CODE (PATHOLOGIST)
ORGANISATION CODE (OF REPORTING PATHOLOGY)
PRIMARY DIAGNOSIS (ICD)
TUMOUR LATERALITY
INVASIVE LESION SIZE
SYNCHRONOUS TUMOUR INDICATOR
HISTOLOGY (SNOMED)
GRADE OF DIFFERENTIATION
CANCER VASCULAR OR LYMPHATIC INVASION
EXCISION MARGIN
NODES EXAMINED NUMBER
NODES POSITIVE NUMBER
T CATEGORY (PATHOLOGICAL)
N CATEGORY (PATHOLOGICAL)
M CATEGORY (PATHOLOGICAL)
TNM CATEGORY (PATHOLOGICAL)
SERVICE REPORT IDENTIFIER
SERVICE REPORT STATUS
SPECIMEN NATURE
Chemotherapy and other drugs
SITE CODE (OF CANCER DRUG TREATMENT)
CONSULTANT CODE
MAIN SPECIALTY CODE
DECISION TO TREAT DATE (ANTI-CANCER DRUG REGIMEN)
DRUG THERAPY TYPE
DRUG TREATMENT INTENT
DRUG REGIMEN ACRONYM
START DATE (ANTI-CANCER DRUG REGIMEN)
RECORDED HEIGHT (CANCER DRUG TREATMENT)
RECORDED WEIGHT (CANCER DRUG TREATMENT)
PERSON BODY SURFACE AREA (PRETREATMENT)
CREATININE CLEARANCE
START DATE (ANTI-CANCER DRUG FRACTION)
ANTI-CANCER DRUG CYCLE IDENTIFIER
DAY NUMBER (ANTI-CANCER DRUG CYCLE)
DURATION OF ANTI-CANCER DRUG CYCLE
DRUG PROGRAMME RESPONSE
PLANNED TREATMENT CHANGE REASON
HEALTHCARE RESOURCE GROUP CODE
Radiotherapy (Teletherapy)
SITE CODE (OF TELETHERAPY)
CONSULTANT CODE
DECISION TO TREAT DATE (TELETHERAPY TREATMENT COURSE)
CANCER TREATMENT INTENT
START DATE (TELETHERAPY TREATMENT COURSE)
END DATE (TELETHERAPY TREATMENT COURSE)
RADIOTHERAPY PRESCRIBED DOSE
TELETHERAPY PRESCRIBED FRACTIONS
RADIOTHERAPY PRESCRIBED DURATION
RADIOTHERAPY ACTUAL DOSE
TELETHERAPY ACTUAL FRACTIONS
DURATION OF TELETHERAPY TREATMENT COURSE
TELETHERAPY BEAM TYPE
TELETHERAPY BEAM ENERGY
TELETHERAPY FIELDS
TELETHERAPY COMPLEXITY GROUP
RADIOTHERAPY ANAESTHETIC
TELETHERAPY MULTIPLE PLANNING
HEALTHCARE RESOURCE GROUP CODE
TREATMENT COURSE STATUS
Radiotherapy (Brachytherapy)
SITE CODE (OF BRACHYTHERAPY)
CONSULTANT CODE
DECISION TO TREAT DATE (BRACHYTHERAPY TREATMENT COURSE)
CANCER TREATMENT INTENT
BRACHYTHERAPY TYPE
START DATE (BRACHYTHERAPY TREATMENT COURSE)
END DATE (BRACHYTHERAPY TREATMENT COURSE)
RADIOTHERAPY PRESCRIBED DOSE
BRACHYTHERAPY PRESCRIBED FRACTIONS
RADIOTHERAPY PRESCRIBED DURATION
RADIOTHERAPY ACTUAL DOSE
BRACHYTHERAPY DOSE RATE
DURATION OF BRACHYTHERAPY TREATMENT COURSE
BRACHYTHERAPY ISOTOPE TYPE
RADIOTHERAPY ANAESTHETIC
UNSEALED SOURCE PATIENT TYPE
BRACHYTHERAPY DELIVERY TYPE
HEALTHCARE RESOURCE GROUP CODE
TREATMENT COURSE STATUS
Palliative Care
DECISION TO TREAT DATE (SPECIALIST PALLIATIVE TREATMENT COURSE)
START DATE (SPECIALIST PALLIATIVE TREATMENT COURSE)
Clinical Trials
PATIENT TRIAL STATUS (CANCER)
CANCER CLINICAL TRIAL TREATMENT TYPE
Clinical Status Assessment
CLINICAL STATUS ASSESSMENT DATE (CANCER)
PRIMARY TUMOUR STATUS
NODAL STATUS
METASTATIC STATUS
MARKER RESPONSE STATUS
PERFORMANCE STATUS (ADULT)
TREATMENT TYPE (CANCER MORBIDITY)
MORBIDITY CODE (CANCER SURGERY)
PATIENT FOLLOW-UP STATUS (CANCER)
MORBIDITY CODE (CHEMOTHERAPY)
MORBIDITY CODE (RADIOTHERAPY)
MORBIDITY CODE (COMBINATION)
Death Details
PERSON DEATH DATE
DEATH LOCATION TYPE
DEATH CAUSE IDENTIFICATION METHOD
DEATH CAUSE CANCER
DEATH CAUSE CODE (IMMEDIATE)
DEATH CAUSE CODE (CONDITION)
DEATH CAUSE CODE (UNDERLYING)
DEATH CAUSE CODE (SIGNIFICANT)
DEATH CODE DISCREPANCY ORIGINATOR
Dataset data element
Waiting Times Details
WAITING TIME ADJUSTMENT (DECISION TO TREAT)
WAITING TIME ADJUSTMENT (TREATMENT)
WAITING TIME ADJUSTMENT REASON (DECISION TO TREAT)
WAITING TIME ADJUSTMENT REASON (TREATMENT)
DELAY REASON REFERRAL TO TREATMENT (CANCER)
DELAY REASON DECISION TO TREATMENT (CANCER)
DELAY REASON COMMENT (REFERRAL TO TREATMENT)
DELAY REASON COMMENT (DECISION TO TREATMENT)
DECISION TO TREAT DATE (ACTIVE MONITORING)
START DATE (ACTIVE MONITORING)
Site-Specific Data Elements

Breast Cancer

Breast Cancer
Dataset data element
DIAGNOSTIC ROUTE
BREAST CANCER NURSE SEEN
RESPONSIBLE CARE PROFESSIONAL CODE (OPCS)
MENSTRUAL STATUS
LMP DATE
CLINICAL EXAMINATION FINDINGS (BREAST CANCER)
ENDOCRINE THERAPY TYPE
MARKER LYMPH NODE RESULT

Colorectal Cancer

Colorectal Cancer
Dataset data element
DIAGNOSTIC ROUTE
COLORECTAL NURSE OR STOMA THERAPIST SEEN
RESPONSIBLE CARE PROFESSIONAL CODE (OPCS)
GRADE OF RESPONSIBLE HCP
PATIENT PROCEDURE RESULT (COLONOSCOPY)
COLONOSCOPY INCOMPLETE REASON
COLORECTAL NURSE OR STOMA THERAPIST SEEN
SURGICAL URGENCY
THEATRE CASE START TIME
MARKER LYMPH NODE RESULT

Lung Cancer

Lung Cancer
Dataset data element
SMOKING STATUS
YEAR STOPPED SMOKING
ESTIMATED PACK YEARS
COPD PRESENT
FEV1 ABSOLUTE AMOUNT
FEV1 PERCENTAGE

Head and Neck Cancer

Head and Neck Cancer
Dataset data element
PATIENT HISTORY (CANCER DIAGNOSIS)
YEAR CANCER DIAGNOSED
PREVIOUS TREATMENT ELSEWHERE
TOBACCO USAGE TYPE
SMOKING STATUS
TOBACCO CHEWING HISTORY
YEAR STOPPED SMOKING
ESTIMATED PACK YEARS
ALCOHOL STATUS
QUALITY OF LIFE (AT DIAGNOSIS)
SYMPTOMS FIRST NOTED DATE
FAMILY OR SURNAME OF RELATION WITH CANCER
RELATIONSHIP TO PERSON
PRIMARY DIAGNOSIS OF RELATION (ICD)
NUTRITIONAL SUPPORT PROVIDED (CANCER)
NUTRITIONAL SUPPORT PROVIDED TYPE (CANCER)
NUTRITIONAL PROCEDURE (OPCS)
NUTRITIONAL PROCEDURE COMPLICATION (ICD)
CONTACT DATE (DIETICIAN INITIAL)

Sarcoma and Skin Cancer

Sarcoma and Skin Cancer
Dataset data element
BASAL CELL CLINICAL MORPHOLOGY
BONE SARCOMA LOCATION
CLINICAL EXCISION MARGIN
CLOSEST MARGIN
DERMATOLOGIST BODY SITE (SKIN CANCER CARE SPELL)
DERMATOLOGIST BODY SITE (SKIN CANCER LESION)
DISTRIBUTION OF LESIONS PRESENT
GENETICALLY DETERMINED SKIN CANCER TYPE
NECROSIS
NEW LESIONS TREATED NUMBER (CHEMOTHERAPY)
NEW LESIONS TREATED NUMBER (RADIOTHERAPY)
NEW LESIONS TREATED NUMBER (SURGERY)
PATHOLOGY SPECIMEN TYPE
PATIENT ON IMMUNOSUPPRESSIVE THERAPY
PERINEURAL INVASION
PREVIOUS SKIN CANCER
RECURRENT LESIONS TREATED NUMBER (CHEMOTHERAPY)
RECURRENT LESIONS TREATED NUMBER (RADIOTHERAPY)
RECURRENT LESIONS TREATED NUMBER (SURGERY)
SARCOMA CONDITION FIRST SEEN
SARCOMA LARGEST DIAMETER
SARCOMA PART SITE
SARCOMA PREDISPOSING CONDITION (FAMILY)
SARCOMA PREDISPOSING CONDITION (OTHER PHYSICAL)
SARCOMA RELATION TO DEEP FASCIA
SARCOMA SURGICAL MARGIN
SARCOMA SURGICAL PROCEDURE TYPE
SARCOMA TUMOUR SITE
SKIN CANCER LARGEST CLINICAL DIAMETER (SKIN CANCER CARE SPELL)
SKIN CANCER LARGEST CLINICAL DIAMETER (SKIN CANCER LESION)
SKIN CANCER NEW RECURRENT INDICATOR
SKIN CANCER SUBSEQUENT DIAGNOSIS DATE
SKIN LYMPHOMA CLINICAL MORPHOLOGY
SKIN TCELL CLINICAL VARIANT
SKIN TCELL SURFACE AREA
SKIN TUMOUR STATUS
SOFT TISSUE SARCOMA LOCATION

Urological Cancer

Urological Cancer
Dataset data element
SERUM TUMOUR MARKER PSA
S CATEGORY FINAL PRETREATMENT
DRUG ROUTE OF ADMINISTRATION

Upper GI Cancer

Upper GI Cancer
Dataset data element
POSSUM SCORE (AT DIAGNOSIS)
POSSUM SCORE (AFTER SURGERY)
RELATIONSHIP TO PERSON
PRIMARY DIAGNOSIS OF RELATION (ICD)
SMOKING STATUS
YEAR STOPPED SMOKING
ESTIMATED PACK YEARS
ALCOHOL STATUS
CO-MORBIDITY (ICD)
CLINICAL SIGN OR SYMPTOM (ICD)

Gynaecological Cancer

Gynaecological Cancer
Dataset data element
GYNAECOLOGICAL ONCOLOGY ACCREDITATION