Change Request

NHS Information Authority

Data Standards and Information Programme

Reference: Change Request 310
Version No:1.17
Subject:DG1114 - Diabetes Reduced Data Set
Type of Change:Revision of NHS data standards
Effective Date:Immediate
Reason for Change:Update NHS Dictionary Version 2

Background:

The Diabetes Dataset Project was initiated in Autumn 2001 to support the information requirements of the National Service Framework (NSF) for Diabetes and to build upon the recommendations of the Diabetes Information Strategy. A key priority of the Information Strategy is to develop a National Diabetes Dataset with the purpose of allowing the consistent and reliable sharing of information along the diabetes care pathway, and additionally to support clinical audit, performance management and specialist clinical care.

A Diabetes Dataset Advisory Group (DDAG), with wide representation from the colleges, professional bodies, voluntary organisations, patient representatives, and local health care providers, was convened within the remit of the Diabetes Dataset Project. The aim was to build upon the work already undertaken within the diabetes clinical community, so that currently used and existing datasets are developed into a National Diabetes Dataset.

The Objectives of the Diabetes Datasets project are:
1. To develop a Health Management dataset suitable for use by people* with diabetes and their care providers (Diabetic Users Dataset).
2. To develop a Health Management dataset suitable for identification of and use by people* at increased risk of developing diabetes and their care providers (Diabetes At Risk Dataset).

(* understood to include children and their parents but special mention will be made where certain items are inappropriate/ not normally measured/ collected under a certain age)

3. To develop additional specialist & organisational extension datasets to meet the needs of information sharing across a distributed care environment.

Information to support all other health functions, such as public health and prevention programmes, and the use of performance indicators, clinical audit or clinical governance shall be derived from 1), 2) and 3) above.

In line with the patient-centred focus of the Diabetes NSF, the first phase of the Diabetes Dataset Project has resulted in development of the Diabetic Users Dataset (DUD). The DUD defines the minimum standards for the data that is required by a patient, in order to understand and take informed control of their care. The DUD includes all the data items that have been collected as part of the Quality Indicators for Diabetes Services (QUIDS) Project. The data items collected by QUIDS have been developed to produce the Summary Core Dataset for Diabetes.

Summary of changes:
 
Class Definitions
CARE ISSUE   New Class
CLINICAL INTERVENTION   Change to Description
CLINICAL INTERVENTION   Change to Relationships
DIABETES CARE ISSUE   New Class
DIABETES ROUTINE REVIEW RESULT   New Class
OBSERVATION VALUE TYPE   New Class
PERSON OBSERVATION   Change to Attributes
PERSON OBSERVATION   Change to Relationships
 
Attribute Definitions
ALBUMINURIA STAGE   New Attribute
CARE ISSUE TYPE   New Attribute
DIABETES ROUTINE REVIEW   New Attribute
DIABETES ROUTINE REVIEW TYPE   New Attribute
DIABETES TYPE   New Attribute
OBSERVATION DATE   New Attribute
OBSERVATION TYPE   New Attribute
OBSERVATION VALUE   New Attribute
VALUE TYPE   New Attribute
 
Data Elements
ALBUMINURIA STAGE   New Data Element
DEATH DATE   New Data Element
DIABETES ROUTINE REVIEW (EYE)   New Data Element
DIABETES ROUTINE REVIEW (FOOT)   New Data Element
DIABETES TYPE   New Data Element
DIAGNOSIS DATE (DIABETES)   New Data Element
DIAGNOSTIC CODING (DIABETES RELEVANT ICD-10)   New Data Element
DIAGNOSTIC CODING (DIABETES RELEVANT READ CODES)   New Data Element
DIASTOLIC BLOOD PRESSURE   New Data Element
OBSERVATION DATE (BLOOD PRESSURE)   New Data Element
OBSERVATION DATE (BMI)   New Data Element
OBSERVATION DATE (DIABETES RELEVANT DIAGNOSIS)   New Data Element
OBSERVATION DATE (EYE EXAMINATION)   New Data Element
OBSERVATION DATE (FOOT EXAMINATION)   New Data Element
OBSERVATION DATE (HBA1C LEVEL)   New Data Element
OBSERVATION DATE (SERUM CHOLESTEROL LEVEL)   New Data Element
OBSERVATION DATE (SERUM CREATININE LEVEL)   New Data Element
OBSERVATION DATE (SMOKING STATUS)   New Data Element
OBSERVATION DATE (URINARY ALBUMIN LEVEL)   New Data Element
PERSON OBSERVATION (BMI)   New Data Element
PERSON OBSERVATION (HBA1C LEVEL)   New Data Element
PERSON OBSERVATION (SERUM CHOLESTEROL LEVEL)   New Data Element
PERSON OBSERVATION (SERUM CREATININE LEVEL)   New Data Element
PERSON OBSERVATION (URINARY ALBUMIN LEVEL)   New Data Element
PROCEDURE CODING (DIABETES RELEVANT OPCS-4)   New Data Element
PROCEDURE CODING (DIABETES RELEVANT READ)   New Data Element
SYSTOLIC BLOOD PRESSURE   New Data Element
URINARY ALBUMIN LEVEL TESTING METHOD   New Data Element
 
Diagrams
SCDD1 SUMMARY CORE DATA SET FOR DIABETES   New Diagram
 
Supporting Information
SUMMARY CORE DATA SET FOR DIABETES   New Supporting Information
SUMMARY CORE DATA SET FOR DIABETES   New Supporting Information
 
Packages
DIABETES DATA SET   New Package

Name:Norma Southwood
Date:1 December 2003
Sponsor:Data Standards Team

Note: Additions shown in highlighted with a blue background. Deletions are shown using strikeout.


CARE ISSUE

Change to Class: New Class

CARE ISSUE

This is a Meta Model Class.

A PERSON OBSERVATION towards which care is directed. It may be a diagnosis, sign, symptom or any other PERSON OBSERVATION.

A single CARE ISSUE will provide the focus for a CARE SPELL. For example, Diabetes, AMI, Mental Health, Cancer.

The CARE ISSUE provides an association between other PERSON OBSERVATIONS and CARE ACTIVITIES that are relevant to that particular issue. For example a blood pressure reading taken during a routine GP visit can be associated with a diabetes CARE ISSUE.



This class is also known by these names:
ContextAlias
pluralCARE ISSUES

Attributes of this Class are:
KCARE ISSUE TYPE
KSTART DATE
OEND DATE

Each CARE ISSUE
must be performed by one and only one PERSON OBSERVATION
may be require one or more PERSON OBSERVATION
may be relevant to one or more PERSON OBSERVATION


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CLINICAL INTERVENTION

Change to Class: Change to Description

A type of care activity.

Information about medical or surgical actions performed on or planned to be performed on a PATIENT.

CLINICAL INTERVENTIONS may be interventions or investigations such as PATIENT PROCEDURES, PATHOLOGY LABORATORY INVESTIGATIONS, A+E PATIENT INVESTIGATIONS, A+E PATIENT TREATMENTS or DRUG TREATMENTS.

References:
The version 1.1 NHS Standard EDIFACT Messages for Pathology Requests and Reports, 2001
The Version 1.0 Trial NHS Standard EDIFACT Messages for GP-Hospital Communications - 17.5.95



This class is also known by these names:
ContextAlias
pluralCLINICAL INTERVENTIONS


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CLINICAL INTERVENTION

Change to Class: Change to Relationships

Each CLINICAL INTERVENTION
Kmust be associated with one and only one PATIENT
may be endocrine therapy for one CANCER CARE SPELL
may be related to one or more CLINICAL INVESTIGATION RESULT ITEM
may be relevant to one DIABETES CARE ISSUE
may be associated with one or more HEALTH CARE PROFESSIONAL INVOLVEMENT
may be classified by one or more INTERVENTION CLASSIFICATION ASSOCIATION
may be related to one SERVICE PROVIDED


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DIABETES CARE ISSUE

Change to Class: New Class

DIABETES CARE ISSUE

A type of CARE ISSUE.

Diabetes is a chronic and progressive disease that comprises a group of disorders with many different causes, all of which are characterised by a raised blood glucose level. This is the result of a lack of the hormone insulin and/or an inability to respond to insulin. Insulin in the blood, produced by the pancreas, is the hormone which ensures that glucose (sugar) obtained from food can be used by the body. There are two main types of diabetes - Type 1 diabetes and Type 2 diabetes.



This class is also known by these names:
ContextAlias
pluralDIABETES CARE ISSUES

Attributes of this Class are:
DIABETES TYPE

Each DIABETES CARE ISSUE
may be associated with one or more CLINICAL INTERVENTION
may be require one or more DIABETES ROUTINE REVIEW RESULT


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DIABETES ROUTINE REVIEW RESULT

Change to Class: New Class

DIABETES ROUTINE REVIEW RESULT

This is a transitory Class that will be replaced as the Generic Core Model and Diabetes Dataset are developed.

A type of PERSON OBSERVATION.

This is a routine review carried out for all young people and adults with diabetes to provide regular surveillance for the long-term complications of diabetes.



This class is also known by these names:
ContextAlias
pluralDIABETES ROUTINE REVIEW RESULTS

Attributes of this Class are:
DIABETES ROUTINE REVIEW
DIABETES ROUTINE REVIEW TYPE

Each DIABETES ROUTINE REVIEW RESULT
must be review for one and only one DIABETES CARE ISSUE


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OBSERVATION VALUE TYPE

Change to Class: New Class

OBSERVATION VALUE TYPE

This is a transitory Class that will be replaced as the Generic Core Model is developed.

Classifies the type of value entered in the OBSERVATION VALUE.



This class is also known by these names:
ContextAlias
pluralOBSERVATION VALUE TYPES

Attributes of this Class are:
KVALUE TYPE

Each OBSERVATION VALUE TYPE
may be classifier for one or more PERSON OBSERVATION


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PERSON OBSERVATION

Change to Class: Change to Attributes

Attributes of this Class are:
KPERSON OBSERVATION NUMBER
KSTART DATE
OALBUMINURIA STAGE
   Required for person OBSERVATION TYPE '07 - Urinary Albumin Level'
OEND DATE
OEND TIME
OBSERVATION DATE
OBSERVATION TYPE
OBSERVATION VALUE
START TIME


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PERSON OBSERVATION

Change to Class: Change to Relationships

Each PERSON OBSERVATION
Kmust be an observation of one and only one PERSON
must be observed by one and only one HEALTH CARE PROFESSIONAL
or must be observed by one and only one PERSON
must be classified by one and only one OBSERVATION VALUE TYPE
may be required by one CARE ISSUE
may be of relevance to one CARE ISSUE
may be act as one or more CARE ISSUE
may be the observation in one or more PERSON OBSERVATION WITHIN CARE SPELL
may be related to one SERVICE PROVIDED


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ALBUMINURIA STAGE

Change to Attribute: New Attribute

ALBUMINURIA STAGE

The level of albuminuria in relation to risk of diabetic renal disease and/or cardiovascular disease. Identifies renal and cardiovascular risk for a person with diabetes.

National Codes:
01 Normalalbuminuria
02 Microalbuminuria
03 Macroalbuminuria



This attribute is also known by these names:
ContextAlias
pluralALBUMINURIA STAGES


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CARE ISSUE TYPE

Change to Attribute: New Attribute

CARE ISSUE TYPE

Classifies the type of CARE ISSUE identified and which may be the focus of a CARE SPELL. This is derived from the PERSON OBSERVATION that acts as the Care Issue for example Diabetes, High Blood Pressure etc.



This attribute is also known by these names:
ContextAlias
pluralCARE ISSUE TYPES


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DIABETES ROUTINE REVIEW

Change to Attribute: New Attribute

DIABETES ROUTINE REVIEW

A record about the regular DIABETES ROUTINE REVIEW RESULT for a person with diabetes.

National Codes:
01 Carried out
02 Not done
03 Not necessary



This attribute is also known by these names:
ContextAlias
pluralDIABETES ROUTINE REVIEWS


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DIABETES ROUTINE REVIEW TYPE

Change to Attribute: New Attribute

DIABETES ROUTINE REVIEW TYPE

Identifies the type of regular DIABETES ROUTINE REVIEW RESULT for a person with diabetes.

National Codes:
01 Eye Examination
02 Foot Examination



This attribute is also known by these names:
ContextAlias
pluralDIABETES ROUTINE REVIEW TYPES


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DIABETES TYPE

Change to Attribute: New Attribute

DIABETES TYPE

Classifies the type of diabetes experienced by the PATIENT.

National Codes:
01 Type 1
02 Type 2
06 MODY
08 Other Specified
99 Not specified

'99 - Not Specified' should only be used in the short term and refined to one of the alternative options as soon as possible.



This attribute is also known by these names:
ContextAlias
pluralDIABETES TYPES


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OBSERVATION DATE

Change to Attribute: New Attribute

OBSERVATION DATE

The date on which a PERSON OBSERVATION was observed.



This attribute is also known by these names:
ContextAlias
pluralOBSERVATION DATES


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OBSERVATION TYPE

Change to Attribute: New Attribute

OBSERVATION TYPE

Identifies the type of PERSON OBSERVATION observed during a CARE ACTIVITY.

National Codes:
01 Blood Pressure
02 Body Mass Index
03 Patient Diagnosis
04 Serum Cholesterol Level
05 Serum Creatinine Level
06 HbA1c Level
07 Urinary Albumin Level
08 Diabetes Routine Review
09 Cardiac Arrest
10 Acute Myocardial Infarction History Item



This attribute is also known by these names:
ContextAlias
pluralOBSERVATION TYPES


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OBSERVATION VALUE

Change to Attribute: New Attribute

OBSERVATION VALUE

The recorded value for the PERSON OBSERVATION made.



This attribute is also known by these names:
ContextAlias
pluralOBSERVATION VALUES


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VALUE TYPE

Change to Attribute: New Attribute

VALUE TYPE

The type of value recorded for a PERSON OBSERVATION.

National Codes:
01 mmol/L
02 µmol/L
03 µg/L
04 µg/mmol
05 µg/ml/hr
06 µg/min
07 µg/24hr
08 Number
09 Percentage



This attribute is also known by these names:
ContextAlias
pluralVALUE TYPES


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ALBUMINURIA STAGE

Change to Data Element: New Data Element

ALBUMINURIA STAGE

Format/length: n2
HES item:
National Codes: Press Definition button for the National Codes
Default Codes:  

Notes:



This data element is also known by these names:
ContextAlias
pluralALBUMINURIA STAGES


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DEATH DATE

Change to Data Element: New Data Element

DEATH DATE

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
This records the date on which a PERSON died, as recorded on the Death Certificate and corresponds to DEATH DATE.



This data element is also known by these names:
ContextAlias
pluralDEATH DATES


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DIABETES ROUTINE REVIEW (EYE)

Change to Data Element: New Data Element

DIABETES ROUTINE REVIEW (EYE)

Format/length: n2
HES item:
National Codes: Press Definition button for the National Codes
Default Codes:  

Notes:
A DIABETES ROUTINE REVIEW of the eyes within an approved diabetes eye screening programme.



This data element is also known by these names:
ContextAlias
pluralDIABETES ROUTINE REVIEWS (EYE)


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DIABETES ROUTINE REVIEW (FOOT)

Change to Data Element: New Data Element

DIABETES ROUTINE REVIEW (FOOT)

Format/length: n2
HES item:
National Codes: Press Definition button for the National Codes
Default Codes:  

Notes:
A DIABETES ROUTINE REVIEW of the foot carried out by appropriately trained personnel using an approved foot screening procedure.



This data element is also known by these names:
ContextAlias
pluralDIABETES ROUTINE REVIEWS (FOOT)


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DIABETES TYPE

Change to Data Element: New Data Element

DIABETES TYPE

Format/length: n2
HES item:
National Codes: Press Definition button for the National Codes
Default Codes:  



This data element is also known by these names:
ContextAlias
pluralDIABETES TYPES


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DIAGNOSIS DATE (DIABETES)

Change to Data Element: New Data Element

DIAGNOSIS DATE (DIABETES)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
Diagnosis Date (Diabetes) is the same as OBSERVATION DATE for the sub type PATIENT DIAGNOSIS where PRIMARY DIAGNOSIS is 'diabetes'.



This data element is also known by these names:
ContextAlias
pluralDIAGNOSIS DATES (DIABETES)


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DIAGNOSTIC CODING (DIABETES RELEVANT ICD-10)

Change to Data Element: New Data Element

DIAGNOSTIC CODING (DIABETES RELEVANT ICD-10)

Format/length: annnaa for ICD - 10 (see 10th Revision)
HES item:
National Codes:
Default Codes:  

Notes:
Records the DIAGNOSTIC CODING identified in the following relevant conditions and complications associated with the diabetic condition: The list shows those conditions and complications currently extracted by QUIDS using data linkage to Hospital Episode Statistics (HES).

ICD-10 Codes for relevant conditions and complications
HYPERDKA ( Hyperglycaemic emergencies)
E10.1 Insulin-dependent diabetes mellitus with ketoacidosis
E11.1 Non-insulin-dependent diabetes mellitus with ketoacidosis
E13.1 Other specified diabetes mellitus with ketoacidosis
E14.1 Unspecified diabetes mellitus with ketoacidosis
E10.0 Insulin-dependent diabetes mellitus with ketoacidosis and coma
E11.0 Non-insulin-dependent diabetes mellitus with ketoacidosis and coma
E13.0 Other specified diabetes mellitus with coma
E14.0 Unspecified diabetes mellitus with coma
ANGINA
I20.0 Unstable angina
I20.1 Angina pectoris with documented spasm
I20.8 Other forms of angina pectoris
I20.9 Angina pectoris
MI (Myocardial Infarction)
I21.0 Acute transmural myocardial infarction of anterior wall
I21.1 Acute transmural myocardial infarction of inferior wall
I21.2 Acute transmural myocardial infarction of other sites
I21.3 Acute transmural myocardial infarction of unspecified site
I21.4 Acute subendocardial myocardial infarction
I21.9 Acute myocardial infarction
I22.0 Subsequent myocardial infarction of anterior wall
I22.1 Subsequent myocardial infarction of inferior wall
I22.8 Subsequent myocardial infarction of other sites
I22.9 Subsequent myocardial infarction of unspecified site
CF (Cardiac Failure)
I50.0 Congestive heart failure.
I50.1 Left ventricular failure.
I50.9 Heart failure unspecified.
CVA (Stroke / Cerebro-Vascular Accident)
I61.0 Intracerebral haemorrhage in hemisphere, subcortical
I61.1 Intracerebral haemorrhage in hemisphere, cortical
I61.2 Intracerebral haemorrhage in hemisphere, unspecified
I61.3 Intracerebral haemorrhage in brain stem
I61.4 Intracerebral haemorrhage in cerebellum
I61.5 Intracerebral haemorrhage, intraventricular
I61.6 Intracerebral haemorrhage, multiple localised
I61.8 Other intracerebral haemorrhage
I61.9 Intracerebral haemorrhage, unspecified
I63.0 Cerebral infarct due to thrombosis of precerebral arteries
I63.1 Cerebral infarction due to embolism of precerebral arteries
I63.2 Cerebral infarct due to unspecified occlusion or stenos of precerebral arteries
I63.3 Cerebral infarction due to thrombosis of cerebral arteries
I63.4 Cerebral infarction due to embolism of cerebral arteries
I63.5 Cerebral infarction due to unspecified occlusion or stenosis of cerebral arteries
I63.6 Cerebral infarction due to cerebral venous thrombosis
I63.8 Other cerebral infarction
I63.9 Cerebral infarction, unspecified
I64.X Stroke, unspecified
RRT (End stage renal failure requiring renal replacement therapy)
N18.0 End-stage renal disease
Z99.2 Dependence on renal dialysis
Z49.0 Preparatory care for dialysis
Z49.1 Extracorporeal dialysis
Z49.2 Other dialysis



This data element is also known by these names:
ContextAlias
pluralDIAGNOSTIC CODING (DIABETES RELEVANT ICD-10)


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DIAGNOSTIC CODING (DIABETES RELEVANT READ CODES)

Change to Data Element: New Data Element

DIAGNOSTIC CODING (DIABETES RELEVANT READ CODES)

Format/length: an7 for The Read Codes
HES item:
National Codes:
Default Codes:  

Notes:
Records the DIAGNOSTIC CODING identified in the following relevant conditions and complication associated with the diabetic condition:

Read Codes (diagnosis)
DKA ( Hyperglycaemic emergencies)
4-byte
C2... Diabetes mellitus
Ketoacidosis - diabetic (synonym)
C24.. Diabetes mellitus + ketoacidosis - no coma
C25.. Diabetes with coma
Version 2
C101. Diabetes mellitus with ketoacidosis
C1010 Diabetes mellitus, juvenile type, with ketoacidosis
C1011 Diabetes mellitus, adult onset, with ketoacidosis
C101y Other specified diabetes mellitus with ketoacidosis
C101z Diabetes mellitus NOS with ketoacidosis
ANGINA
4-byte
G44. Angina pectoris
G440. Unstable angina
G444. Stable angina
Version 2
G3111 Unstable angina
G33.. Angina pectoris
G33z. Angina pectoris NOS
G33z7 Stable angina
MI (Myocardial Infarction
4-byte
G6A. Heart failure (preferred term),
Cardiac failure (synonym)
G6A1. Congestive cardiac failure
Version 2
G58.. Heart failure (preferred term)
Cardiac failure (synonym)
G580. Congestive cardiac failure
CVA (Stroke/Cerebro-Vascular Accident)
4-byte
G7.. Cerebrovascular disease
G712. Intracerebral haemorrhage
G73.. Cerebral arterial occlusion
G75.. Stroke/CVA undefined
Version 2
G6... Cerebrovascular disease
G61.. Intracerebral haemorrhage
G64.. Cerebral arterial occlusion
G66.. Stroke/CVA unspecified
RRT (End stage renal failure requiring renal replacement therapy)
4-byte
J16. Chronic renal failure (perferred term)
End stage renal failure (synonym)
Version 2
K050. End stage renal failure



This data element is also known by these names:
ContextAlias
pluralDIAGNOSTIC CODING (DIABETES RELEVANT READ CODES)


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DIASTOLIC BLOOD PRESSURE

Change to Data Element: New Data Element

DIASTOLIC BLOOD PRESSURE

Format/length: n3 - nnn
HES item:
National Codes:
Default Codes:  

Notes:
The recorded sitting blood pressure after 2 minutes rest, at 5th phase (mm Hg).



This data element is also known by these names:
ContextAlias
pluralDIASTOLIC BLOOD PRESSURE


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OBSERVATION DATE (BLOOD PRESSURE)

Change to Data Element: New Data Element

OBSERVATION DATE (BLOOD PRESSURE)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE when the OBSERVATION TYPE 'BLOOD PRESSURE' was taken.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (BLOOD PRESSURE)


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OBSERVATION DATE (BMI)

Change to Data Element: New Data Element

OBSERVATION DATE (BMI)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE when the OBSERVATION TYPE ' Body Mass Index' was calculated.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (BMI)


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OBSERVATION DATE (DIABETES RELEVANT DIAGNOSIS)

Change to Data Element: New Data Element

OBSERVATION DATE (DIABETES RELEVANT DIAGNOSIS)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE when the DIAGNOSTIC CODING (DIABETES RELEVANT ICD-10) or DIAGNOSTIC CODING (DIABETES RELEVANT READ CODES) was first recognised or the date on which a diabetic complication occurred.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (DIABETES RELEVANT DIAGNOSIS)


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OBSERVATION DATE (EYE EXAMINATION)

Change to Data Element: New Data Element

OBSERVATION DATE (EYE EXAMINATION)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE when the DIABETES ROUTINE REVIEW (EYE) took place.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (EYE EXAMINATION)


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OBSERVATION DATE (FOOT EXAMINATION)

Change to Data Element: New Data Element

OBSERVATION DATE (FOOT EXAMINATION)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE when the DIABETES ROUTINE REVIEW (FOOT) took place.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (FOOT EXAMINATION)


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OBSERVATION DATE (HBA1C LEVEL)

Change to Data Element: New Data Element

OBSERVATION DATE (HbA1c LEVEL)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE for the OBSERVATION TYPE 'HbA1c level'.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (HbA1c LEVEL)


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OBSERVATION DATE (SERUM CHOLESTEROL LEVEL)

Change to Data Element: New Data Element

OBSERVATION DATE (SERUM CHOLESTEROL LEVEL)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE for the OBSERVATION TYPE 'serum cholesterol level'.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (SERUM CHOLESTEROL LEVEL)


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OBSERVATION DATE (SERUM CREATININE LEVEL)

Change to Data Element: New Data Element

OBSERVATION DATE (SERUM CREATININE LEVEL)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE for the OBSERVATION TYPE 'serum creatinine level'.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (SERUM CREATININE LEVEL)


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OBSERVATION DATE (SMOKING STATUS)

Change to Data Element: New Data Element

OBSERVATION DATE (SMOKING STATUS)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The START DATE when the SMOKING STATUS was recorded.



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (SMOKING STATUS)


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OBSERVATION DATE (URINARY ALBUMIN LEVEL)

Change to Data Element: New Data Element

OBSERVATION DATE (URINARY ALBUMIN LEVEL)

Format/length: n8 - ccyymmdd
HES item:
National Codes:
Default Codes:  

Notes:
The OBSERVATION DATE for the OBSERVATION TYPE 'urinary albumin level' .



This data element is also known by these names:
ContextAlias
pluralOBSERVATION DATES (URINARY ALBUMIN LEVEL)


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PERSON OBSERVATION (BMI)

Change to Data Element: New Data Element

PERSON OBSERVATION (BMI)

Format/length: n3 nn.n
HES item:
National Codes:
Default Codes:  

Notes:
This records the Body Mass Index of the PERSON and corresponds to OBSERVATION VALUE where the OBSERVATION TYPE = 'Body Mass Index' and the VALUE TYPE = 'Number'.

This value is derived from WEIGHT in kilograms devided by HEIGHT in metres squared (kg/m²).



This data element is also known by these names:
ContextAlias
pluralBMI


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PERSON OBSERVATION (HBA1C LEVEL)

Change to Data Element: New Data Element

PERSON OBSERVATION (HbA1c LEVEL)

Format/length: n3 nn.n
HES item:
National Codes:
Default Codes:  

Notes:
The recorded glycated haemoglobin and corresponds to OBSERVATION VALUE where the OBSERVATION TYPE = "HbA1c Level" and the VALUE TYPE = "number".



This data element is also known by these names:
ContextAlias
pluralPERSON OBSERVATIONS (HbA1c LEVEL)


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PERSON OBSERVATION (SERUM CHOLESTEROL LEVEL)

Change to Data Element: New Data Element

PERSON OBSERVATION (SERUM CHOLESTEROL LEVEL)

Format/length: n3 nn.n
HES item:
National Codes:
Default Codes:  

Notes:
The recorded cholesterol level (mmol/L) and corresponds to OBSERVATION VALUE where the OBSERVATION TYPE = ''Serum Cholesterol Level;" and the VALUE TYPE = "mmol/L".



This data element is also known by these names:
ContextAlias
pluralPERSON OBSERVATIONS (SERUM CHOLESTEROL LEVEL)


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PERSON OBSERVATION (SERUM CREATININE LEVEL)

Change to Data Element: New Data Element

PERSON OBSERVATION (SERUM CREATININE LEVEL)

Format/length: n4 - nnnn
HES item:
National Codes:
Default Codes:  

Notes:
The recorded creatinine (µmol/L): serum creatinine using laboratory assay and corresponds to OBSERVATION VALUE where the OBSERVATION TYPE = "Serum Creatinine Level" and the VALUE TYPE = "µmol/L".



This data element is also known by these names:
ContextAlias
pluralPERSON OBSERVATIONS (SERUM CREATININE LEVEL)


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PERSON OBSERVATION (URINARY ALBUMIN LEVEL)

Change to Data Element: New Data Element

PERSON OBSERVATION (URINARY ALBUMIN LEVEL)

Format/length: n3 - nnn
HES item:
National Codes:
Default Codes:  

Notes:
The recorded result of the urinary albumin level must be accompanied by a recorded URINARY ALBUMIN LEVEL TESTING METHOD.

Derive from the OBSERVATION VALUE recorded for the OBSERVATION TYPE 'Urinary Albumin level'.



This data element is also known by these names:
ContextAlias
pluralPERSON OBSERVATIONS (URINARY ALBUMIN LEVEL)


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PROCEDURE CODING (DIABETES RELEVANT OPCS-4)

Change to Data Element: New Data Element

PROCEDURE CODING (DIABETES RELEVANT OPCS-4)

Format/length: annn for OPCS-4
HES item:
National Codes:
Default Codes:  

Notes:
Records the PROCEDURE CODING identified in the following relevant procedures associated with the diabetic condition.

OPCS-4 Codes
LASER (Ocular retinal photocoagulation)
C82.1 Cauterisation of lesion of retina
Y08.4 Laser destruction (secondary procedure)
MINOR AMPUTATION (amputation toe or below ankle)
X11.1 Amputation of great toe
X11.2 Amputation of phalanax of toe
X11.8 Amputation of toe, other specified
X11.9 Amputation of toe, unspecified
X10.1 Amputation of foot through ankle
X10.8 Amputation of foot, other specified
X10.9 Amputation of foot, unspecified
MAJOR AMPUTATION (amputation leg, above or below knee)
X09.3 Amputation of leg above knee
X09.4 Amputation of leg through knee
X09.5 Amputation of leg below knee
RRT (End stage renal failure requiring renal replacement therapy)
X40.1 Compensation for renal failure, renal dialysis
X40.2 Compensation for renal failure, peritineal dialysis
X40.3 Compensation for renal failure, haemodialysis
X40.8 Compensation for renal failure, other specified
X40.9 Compensation for renal failure, unspecified
M01.1 Transplantation of kidney autotransplantation of kidney
M01.2 Transplantation of kidney allotransplantation of kidney
M01.3 Transplantation of kidney allotransplantation of kidney
M01.8 Transplantation of kidney other specified
M01.9 Transplantation of kidney unspecified



This data element is also known by these names:
ContextAlias
pluralPROCEDURE CODING (DIABETES RELEVANT OPCS-4)


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PROCEDURE CODING (DIABETES RELEVANT READ)

Change to Data Element: New Data Element

PROCEDURE CODING (DIABETES RELEVANT READ)

Format/length: an7 for the Read Codes
HES item:
National Codes:
Default Codes:  

Notes:
Records the PROCEDURE CODING identified in the following relevant procedures associated with the diabetic condition.

Read Codes
LASER (Ocular retinal photocoagulation)
4-byte
8633 Retinal photocoag. therapy
Version 2
No equivalent term
AMPUTATION
4-byte
7EU.. Amputation - lower limb
7EU1. Amputation of toes
7EU2. Amputation foot: tarsal-metatar
7EU3. Amputation foot: mid-tarsal
7EU5. Supramalleolar ankle amptat.
7EU6. Below knee amputaion
7EU7. Above knee amputation
Version 2
7L06. Amputation of leg
7L07. Amputation of foot
7L08. Amputation of toe
RRT (End stage renal failure requiring renal replacement therapy)
4-byte
8874 Haemodialysis (preferred term)
Dialysis - renal (synonym)
7A4 Kidney Transplant
Version 2
7L1A. Compensation for renal failure
7B00. Kidney Transplant



This data element is also known by these names:
ContextAlias
pluralPROCEDURE CODING (DIABETES RELEVANT READ)


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SYSTOLIC BLOOD PRESSURE

Change to Data Element: New Data Element

SYSTOLIC BLOOD PRESSURE

Format/length: n3 - nnn
HES item:
National Codes:
Default Codes:  

Notes:
The recorded sitting blood pressure after 2 minutes rest, at 1st phase (mm Hg).



This data element is also known by these names:
ContextAlias
pluralSYSTOLIC BLOOD PRESSURE


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URINARY ALBUMIN LEVEL TESTING METHOD

Change to Data Element: New Data Element

URINARY ALBUMIN LEVEL TESTING METHOD

Format/length: n2
HES item:
National Codes:
Default Codes:  

Notes:
The method used to determine the PERSON OBSERVATION (URINARY ALBUMIN LEVEL).

The urine specimen used to check for albuminuria may be collected in several ways depending on local preference. Staging definitions vary by method so PERSON OBSERVATION (URINARY ALBUMIN LEVEL) must be accompanied by the method used.

Derive from the VALUE TYPE recorded for the OBSERVATION TYPE 'Urinary Albumin level'.

The derived values are:
01 - Albumin concentration (µg/L)
02 - Albumin creatinine ratio (µg/mmol)
03 - Timed overnight albumin (µg/min)
04 - 24hr albumin excretion (µg/24hr)



This data element is also known by these names:
ContextAlias
pluralURINARY ALBUMIN LEVEL TESTING METHODS


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SCDD1 SUMMARY CORE DATA SET FOR DIABETES

Change to Diagram: New Diagram


 SCDD1 SUMMARY CORE DATA SET FOR DIABETES 


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SUMMARY CORE DATA SET FOR DIABETES

Change to Supporting Information: New Supporting Information

Summary Core Data Set fpr Diabetes

SUMMARY CORE DATA SET FOR DIABETES

Demographics

The demographics section contains demographic items necessary to ensure accurate and trouble free liaison between the care provider and the user. All demographic data items will conform to existing national standards.

Diagnosis

The section contains information relating to the type of diabetes and the date of diagnosis. This information has implications for care and management.

Patient Review Data

These data items act as a record of the regular, routine preventative care reviews that form the core of the 'continuing care' component of the patient journey, together with a record of the high level obseravtions and management decisions that are made at any consultation.

Patient Medical History

This section contains those health issues and procedures that may have an effect on, or be a consequence of, the diabetic condition and which will be needed by the patient/clinician in order to manage and monitor care safely and effectively. It refers to chronic concurrent conditions, and also to acute complications associated more directly with the diabetic condition.


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SUMMARY CORE DATA SET FOR DIABETES

Change to Supporting Information: New Supporting Information

Summary Core Data Set for Diabetes

SUMMARY CORE DATASET FOR DIABETES

The Summary Core Dataset for Diabetes is developed to ensure people with diabetes have up to date records of their risk factors, current management, treatment target achievements and arrangements and outcomes of regular surveillance for complications, to help them monitor their care and make informed choices about their management.

The Summary Core Dataset for Diabetes will also ensure that when people with diabetes meet health care professionals the consultation is fully informed by comprehensive, up to date and accurate information.

Data Set data element  
DEMOGRAPHICS  
NHS NUMBER  
BIRTH DATE  
POSTCODE OF USUAL ADDRESS  
SEX  
DEATH DATE  
DIAGNOSIS  
DIAGNOSIS DATE (DIABETES)  
DIABETES TYPE  
PATIENT REVIEW DATA  
Clinical Observation Data  
PERSON OBSERVATION (BMI)  
OBSERVATION DATE (BMI)  
SYSTOLIC BLOOD PRESSURE Not mandatory for children <12 years old
OBSERVATION DATE (BLOOD PRESSURE)  
DIASTOLIC BLOOD PRESSURE Not mandatory for children <12 years old
OBSERVATION DATE (BLOOD PRESSURE)  
Laboratory Data  
PERSON OBSERVATION (HbA1c LEVEL)  
OBSERVATION DATE (HbA1c LEVEL)  
PERSON OBSERVATION (SERUM CREATININE LEVEL)  
OBSERVATION DATE (SERUM CREATININE LEVEL)  
PERSON OBSERVATION (URINARY ALBUMIN LEVEL) Not mandatory for children <12 years old
URINARY ALBUMIN LEVEL TESTING METHOD  
ALBUMINURIA STAGE  
OBSERVATION DATE (URINARY ALBUMIN LEVEL)  
PERSON OBSERVATION (SERUM CHOLESTEROL LEVEL) Not mandatory for children <12 years old
OBSERVATION DATE (SERUM CHOLESTEROL LEVEL)  
Eye Examination  
DIABETES ROUTINE REVIEW (EYE)  
OBSERVATION DATE (EYE EXAMINATION) Not mandatory for children <12 years old
Foot Examination  
DIABETES ROUTINE REVIEW (FOOT)  
OBSERVATION DATE (FOOT EXAMINATION)  
Smoking Review  
SMOKING STATUS Not mandatory for children <12 years old
OBSERVATION DATE (SMOKING STATUS)  
PERSONAL MEDICAL HISTORY  
The following occur as a recurring group:  
PROCEDURE CODING (DIABETES RELEVANT OPCS-4)  
OBSERVATION DATE (DIABETES RELEVANT DIAGNOSIS)  
The following occur as a recurring group:  
DIAGNOSTIC CODING (DIABETES RELEVANT READ CODES)  
OBSERVATION DATE (DIABETES RELEVANT DIAGNOSIS)  
The following occur as a recurring group:  
PROCEDURE CODING (DIABETES RELEVANT OPCS-4)  
PROCEDURE DATE  
The following occur as a recurring group:  
PROCEDURE CODING (DIABETES RELEVANT READ)  
PROCEDURE DATE  

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DIABETES DATA SET

Change to Package: New Package
Note, this package has a fully qualified name of: Change_Packages.CP310.Data_Dictionary.Messages.Diabetes_Data_Set.Diabetes_Data_Set


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